ProjectsParticipative research and policyPublished reports
Participative research and policy: published reports

Survey of information resources on newborn blood spot screening for parents and health professionals: a systematic review (September 2005)

Disclosing to parents newborn carrier status identified by routine blood spot screening (December 2004)

What is known about communication with parents about newborn bloodspot screening? (May 2003)

The HIVSA training manual (2001)

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Survey of information resources on newborn blood spot screening for parents and health professionals: a systematic review (September 2005)

This review investigates the information available for parents and health professionals in advance of newborn blood spot screening? How well does this information match the quality criteria available from the DISCERN tool for appraising information for treatment choices and the National Screening Committee criteria for mounting a screening programme?

For further details of the review, click here

Disclosing to parents newborn carrier status identified by routine blood spot screening (December 2004)

The aim of this systematic review is to assess the impact of communication about disclosing carrier status following newborn screening; and to collate the relevant evidence about parents’ and health professionals’ views.

For further details of this review, click here

What is known about communication with parents about newborn bloodspot screening? (May 2003)

Two major trends are influencing the development of newborn bloodspot screening. First, technological advances are allowing bloodspot testing to identify a wider range of conditions. Second, raised ethical expectations are demanding that screening programmes adopt policies to support informed choice, as outlined by the National Screening Committee. In order to develop policy, we needed a summary of research about communication with parents for newborn screening.

For further details of the review, click here

HIVSA Training Manual

The HIVSA Training Manual contains details of the particpatory activities undertaken during each of the three workshops to support evidence-informed decision-making in the development, application and evaluation of educational interventions for HIV/AIDS prevention (held in South Africa during May, July and September 2001).

For further details of the manual, click here

  
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