Thank you for supporting Preterm Birth Priority Setting Partnership. We would like to share the process and outcomes of our work.
To download the full report, please click here: Preterm Birth Final Report
The final Top 15
1. Which interventions are most effective to predict or prevent preterm birth?
2. How can infection in preterm babies be better prevented?
3. Which interventions are most effective to prevent necrotising enterocolitis in premature babies?
4. What is the best treatment for lung damage in premature babies?
5. What should be included in packages of care to support parents and families / carers when a premature baby is discharged from hospital?
6. What is the optimum milk feeding strategy and guidance (including quantity and speed of feeding and use of donor and formula milk) for the best long-term outcomes of premature babies?
7. What is the best way to judge whether a premature baby is feeling pain (for example, by their face, behaviours or brain activities)?
8. Which treatments are most effective to prevent early onset pre-eclampsia?
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9. What emotional and practical support improves attachment and bonding, and does the provision of such support improve outcomes for premature babies and their families?
10. Which treatments are most effective for preterm premature rupture of membranes?
11. When is the best time to clamp the umbilical cord in preterm birth?
12. What type of support is most effective at improving breast feeding for premature babies?
13. Which interventions are most effective to treat necrotising enterocolitis in premature babies?
14. Does specialist antenatal care for women at risk of preterm birth improve outcomes for mother and baby?
15. What are the best ways to optimise the environment (such as light and noise) in order to improve outcomes for premature babies?
VOTING FORM
PRETERM BIRTH AND PREMATURE BABIES:
WHAT DO YOU WANT RESEARCHED?
Welcome to stage two of our preterm birth and premature babies research priority setting exercise. For those who sent us questions in the first stage, thank you very much, your response was fantastic.
Having processed all of the suggestions and ideas, we now need your help to decide which of these are most important. We would like you to choose TEN questions, that you think are the most important from the attached document or visit the below link.
Please find a full list of glossary and references here:
Ad libitum ‘without restraint’ ie. milk available at all times with quantity and frequency being free choice (The Medical Dictionary 2013).
Amino acid analysis An analysis of the amino acid components of a protein (Preterm birth priority setting partnership steering group 2013).
Analgesia a deadening or absence of the sense of pain without loss of consciousness (The Free Dictionary 2013).
Antenatal means before birth – so the care and of the pregnant woman and unborn child before birth (Merriam-Webster Dictionary 2013).
Antenatal corticosteroids Steroids are given antenatally to mothers where the birth seems likely to occur early. The drug crosses the placenta and causes the baby’s lungs to mature for breathing (Bliss 2009)
Attachment is an emotional bond to another person. The central theme of attachment theory is that mothers who are available and responsive to their infant’s needs establish a sense of security in their children (Cherry 2013).
Banked preterm milk - human milk donated by mothers of preterm babies. The milk is collected by mothers of preterm babies who are making more milk than their babies require and these mothers donate to a human preterm milk bank. The milk in the milk bank is screened and given to preterm babies whose mothers are not able to express sufficient milk for their babies. Breast milk from mothers of premature babies has been shown to be different from breast milk from mothers of full term babies (preterm milk has more nutrients in it). (Wikipedia: http://en.wikipedia.org/wiki/Human_milk_banking_in_North_America)
Benefits and Risks/Harms Treatments can have benefits but al
The Steering Group of the Preterm Birth PSP has met at the Nottingham Clinical Trials Unit on 18 June 2012 for the third time.
They reviewed a study protocol for this partnership. Please find an updated version of our protocol here:
JLA Preterm Birth Protocol
The Steering Group members have met in Nottingham for the third time.
They have discussed a study protocol, reviewed early findings and future plans.
Please see a full report here for more details:
The 3rd Steering Group Meeting Report

Service user and health professional organisations are working together to gather the most important ideas for research about preterm birth and caring for premature babies. This is called the ‘James Lind Alliance (JLA) Preterm Birth Priority Setting Partnership (PSP)’.
· This survey is available on-line. Go to http://www.surveymonkey.com/s/prembabies to take part in this way.
If you wish to download this survey, please click below files: